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The National Organization for Rare Disorders, a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases and the organizations that serve them. NORD, along with its 280 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient support services. NORD serves all stakeholders in the rare disease community, including patients and their families, patient organizations, researchers, medical professionals, medical students, and companies developing orphan products. NORD also works closely with many government agencies, most notably the National Institutes of Health (NIH) and the Food and Drug Administration (FDA). All NORD programs are focused on one ultimate goal -- to improve the lives of individuals and families affected by rare diseases. NORD is the official sponsor of Rare Disease Day in the U.S., an observance day held on the last day of February each year worldwide. Its goals are to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families.
Heartfelt Foundation is a Santa Monica, CA-based company in the Non-profit sector.
Kansas Sampler Foundation is a Inman, KS-based company in the Non-profit sector.
Intrepid Museum Foundation, Inc. is a New York, NY-based company in the Non-Profit sector.
El Pomar is a general purpose foundation, which means the trustees approve grants across a broad spectrum of focus areas, including: arts and culture, civic and community initiatives, education, health, and human services. Since 1937, trustees of the Foundation have approved nearly 12,600 grants totaling more than $431 million to benefit the state of Colorado. Currently, El Pomar contributes more than $20 million annually through grants to nonprofit organizations and government equivalents across Colorado. When grant dollars alone are not the solution, El Pomar Foundation creates and operates programs that encourage leadership and promote community development. While each program is different, the collective goal is to create an environment where communities thrive. Spencer Penrose was an entrepreneur and a visionary. Mr. Penrose`s approach was straightforward: build for tomorrow. He did this in two ways. In a literal sense, he helped create some of Colorado Springs` most famous landmarks, The BROADMOOR, a world-class resort in the foothills of Colorado`s Rocky Mountains, the Pikes Peak Highway and the Cheyenne Mountain Zoo. Penrose`s second approach to building for tomorrow began in 1937 when he and his wife Julie established a living legacy, El Pomar Foundation. Mr. Penrose left the majority of his estate to El Pomar upon his death in 1939. Julie Penrose succeeded her husband as El Pomar president and served in that position with a generous and indomitable spirit. She left the majority of her estate to El Pomar in 1956. As El Pomar eagerly continues its journey into tomorrow, its direction comes from its past. Spencer and Julie Penrose`s lives, as they lived them, provide the principles that will continue to guide their foundation now and in the future.